I need prayers bad!

Connie

Featured Seller
Oct 19, 2009
3,463
497
83
Minot, ND
I have been in pain for months with my lower back and it has affected my legs and walking. Very weak legs and cannot walk a normal walk. Haven't even dared got shopping by myself for fear my legs will go out and I'll fall. I went to my doctor 3 weeks ago and he said it was all muscular and gave me meds. They helped with the pain, but not with the walking. My hubby got me in with a neurology nurse and she was very concerned. She thought it could be from the neck area which was causing my weird legs. She wanted an MRI of my neck area and lower lumbar. My hubby was able to get me in there today. I was in the MRI for over an hour. It turns out it is neither the neck or lower lumbar, but the middle of my back is a very serious spinal compression. I need surgery and it is a very risky surgery. I am scared to death. We don't have a neurosurgeon here, so we've got to find a good one or I have to go to Bismarck. My sister took me for my appointment and I had just gotten home when my hubby called to say that he was picking me up to do a cat scan on me because the radiologist that read my MRI said I need to be in surgery right now...that I could go to bed tonight and wake up in the morning paralyzed. So, I had the cat scan and it looks like there is calcification around there so I guess that's a good thing. They wanted to admit me into the hospital, but I promised to be very careful if I could come home. Now we will figure the next move. I am so scared. Please pray that I hang in there until the surgery and then that I make it thru that. I just knew there was something terrible wrong with me, but my doc just didn't seem to listen. This condition isn't seen often. I hope to find a surgeon familiar with this. So scared!
 

pawbaby

Moderator
Aug 29, 2008
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Oh Connie, I'm so so, so sorry to hear this about your back and your condition. I have been thinking about you and worrying if you were okay. It's sure too bad that you live in such a small town. I wish you could get a second opinion on your diagnosis as soon as possible. Did they tell you why you had spinal compression? Is it due to spinal stenosis? If so, it could be a laminectomy that you need to remove the pressure on the spinal nerves. If your symptoms have been this severe and not improved then your neurosurgeon likely feels that surgery if the best treatment option for you. This surgery is done often and is very successful. It is quite unusual to have this in the thoracic spine and is more common in the lower lumbar spine. It's very good you had the MRI so quickly and I will pray that your neurosurgeon will be skilled to perform this surgery and that you have a speedy and full recovery. Please let us know when you can what they are planning about your surgery.

You'll be in my thoughts and prayers Connie. Sending you love and hugs. xxoo







 

grandmatoall

Bobbi, Sandy and Roxy.
Aug 30, 2008
5,470
1,414
113
Idaho
I am just seeing this, Connie. I am glad you and your hubby followed through with your back. Even though surgery isn't easy, it sounds like you need it. Please be extremely careful while you wait to be admitted. I will be praying for you. Please keep us updated on what is happening.

Dear Lord, we come to you asking for you to hold Connie and her hubby, in your loving arms as they go through the days ahead. Guide them to the right Doctor. Please give the Dr the knowledge he needs to correctly diagnose and treat Connie. Guide his hands as he operates on her back. Please make sure the people caring for her are loving and dedicated to making her well. We ask you to calm Connie and show her your love every day. Please heal her. We ask in Jesus blessed name, amen.

Sending you lots of love.
 

Connie

Featured Seller
Oct 19, 2009
3,463
497
83
Minot, ND
Oh Connie, I'm so so, so sorry to hear this about your back and your condition. I have been thinking about you and worrying if you were okay. It's sure too bad that you live in such a small town. I wish you could get a second opinion on your diagnosis as soon as possible. Did they tell you why you had spinal compression? Is it due to spinal stenosis? If so, it could be a laminectomy that you need to remove the pressure on the spinal nerves. If your symptoms have been this severe and not improved then your neurosurgeon likely feels that surgery if the best treatment option for you. This surgery is done often and is very successful. It is quite unusual to have this in the thoracic spine and is more common in the lower lumbar spine. It's very good you had the MRI so quickly and I will pray that your neurosurgeon will be skilled to perform this surgery and that you have a speedy and full recovery. Please let us know when you can what they are planning about your surgery.

You'll be in my thoughts and prayers Connie. Sending you love and hugs. xxoo



QUOTE]

Thank you so much, Cory. I am having more pain than usual, but I think it is because I was an hour and 25 minutes in the MRI flat on my back. She showed me the spinal cord and how wide it is, but in that spot, it is about 1/4 the width. I think that is one reason they are so concerned because it is so narrow there. Surgery is not an option, but a must. The one surgeon thinks I've had this for quite a while, but then became symptomatic in the past few months. I'm wondering if it was that bad fall I took outside last summer. The reason we don't have a neurosurgeon here is because the one we had was arrested for child molestation. Unbelievable. Anyway, she told me that some surgeons go into the side and have to move a lung to get to it. OMGosh...that shook me up too. I pray that the one I choose can go in from the back. Of course, she had to tell me the risks and that frightens me so too. If I don't make it, what will my little pups do. I am so filled with fear and doubt I'll sleep much tonight. I have trouble sleeping under normal circumstances and scared I'll wake up paralyzed. My legs go really goofy when I'm in bed and go into muscle like spasms whenever I try to move. I also get regular pain, burning pain and all kinds of very weird feelings in them. I guess I'll go lay down again. Thanks Cory! Hugs to you!




 

grandmatoall

Bobbi, Sandy and Roxy.
Aug 30, 2008
5,470
1,414
113
Idaho
Connie, when my back is really hurting, it helps to lay on my side and put pillows under my back and tummy. Tuck them in tight, both in front and in back. That allows your back muscles to totally relax. It is about the only thing I have found that does. When I had back surgery, a wonderful nurse did that for me. It also allows you to drape your arm around the pillow, so your arm isn't pulling on your back either.

Just a thought. Hugs.
 

Candy

Owner/Admin
Staff member
Aug 29, 2008
32,507
6,214
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Washington State
Oh my Gosh my Friend, how scary, i am sure you going through all kinds of emotions, but get those bad thoughts right out of your Head, you got to stay positive Connie for yourself and the pups, they need you, but i bet they are picking up on you being upset. Connie i will be praying with all my Heart that everything will be ok. Call me tomorrow if you want to talk as i don't want to call during a bad time...i wish i could be there with you and comfort you ! Please , please let us know if you can my Friend, but know my Prayers and love will be with you ! :prayer::blowkiss:
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Connie

Featured Seller
Oct 19, 2009
3,463
497
83
Minot, ND
Hubby is taking me to Bismarck to see a doctor there. I don't know if I'll be back today. He may say this has to be done right away and put me in the hospital. I'll try to update later. Thanks for the prayers. I'm so scared. Gotta be ready in an hour and a half and have to leave my dogs.
 

pawbaby

Moderator
Aug 29, 2008
9,671
1,918
113
Oh Connie, I'm so so, so sorry to hear this about your back and your condition. I have been thinking about you and worrying if you were okay. It's sure too bad that you live in such a small town. I wish you could get a second opinion on your diagnosis as soon as possible. Did they tell you why you had spinal compression? Is it due to spinal stenosis? If so, it could be a laminectomy that you need to remove the pressure on the spinal nerves. If your symptoms have been this severe and not improved then your neurosurgeon likely feels that surgery if the best treatment option for you. This surgery is done often and is very successful. It is quite unusual to have this in the thoracic spine and is more common in the lower lumbar spine. It's very good you had the MRI so quickly and I will pray that your neurosurgeon will be skilled to perform this surgery and that you have a speedy and full recovery. Please let us know when you can what they are planning about your surgery.

You'll be in my thoughts and prayers Connie. Sending you love and hugs. xxoo



QUOTE]

Thank you so much, Cory. I am having more pain than usual, but I think it is because I was an hour and 25 minutes in the MRI flat on my back. She showed me the spinal cord and how wide it is, but in that spot, it is about 1/4 the width. I think that is one reason they are so concerned because it is so narrow there. Surgery is not an option, but a must. The one surgeon thinks I've had this for quite a while, but then became symptomatic in the past few months. I'm wondering if it was that bad fall I took outside last summer. The reason we don't have a neurosurgeon here is because the one we had was arrested for child molestation. Unbelievable. Anyway, she told me that some surgeons go into the side and have to move a lung to get to it. OMGosh...that shook me up too. I pray that the one I choose can go in from the back. Of course, she had to tell me the risks and that frightens me so too. If I don't make it, what will my little pups do. I am so filled with fear and doubt I'll sleep much tonight. I have trouble sleeping under normal circumstances and scared I'll wake up paralyzed. My legs go really goofy when I'm in bed and go into muscle like spasms whenever I try to move. I also get regular pain, burning pain and all kinds of very weird feelings in them. I guess I'll go lay down again. Thanks Cory! Hugs to you!



Connie, I feel so badly for you but it's so important for you to stay very positive. I wish that they would give you something stronger for the pain until you can have this surgery. If your pain is better controlled it will also help you relax more and prevent so much back pain and spasm. It definitely sounds like a severe nerve root impingement that is causing the pain and symptoms in your legs.

Bobbi gave you some very good advice on how to try to relax better when you're sleeping. When you are laying on one side or the other try putting a long soft pillow between your knees and lower legs so they are well supported and another pillow at the front to rest your upper arm on so you can relax. If you're laying flat on your back try putting a small pillow under your knees to take the tension off of your lower back.

I'm sure laying in the MRI machine for that long caused you allot of stress and tension and this likely contributed to your back going in full spasm like it did. Severe back spasm is painful it's not funny! I have had an MRI twice before of my neck and shoulder and it's such a closed-in space and can certainly make a person nervous, especially when they tell you not to move.

I hope when you see the neurosurgeon in Bismark that he or she will give you some reassurance. I also hope you won't have to wait long for the surgery. Continued prayers and positive thoughts for you Connie. Love you! xxoo





 

pawbaby

Moderator
Aug 29, 2008
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Connie, I was just looking online and found this site that talks about non invasive laser surgery for thoracic spinal stenosis. Here is the link: https://www.laserspineinstitute.com/back_problems/spinal_stenosis/thoracic/ I'm not sure if you'd be a candidate but maybe it would be worth giving them a call. I think I would if it were me. They are not located in Bismark but have several other locations throughout the US. You already have your MRI's so maybe they could tell you whether or not you'd be a candidate if they took a look at the MRI's. I hope Bismark is a major center with a teaching hospital? If not, it might be worth your while to go somewhere else where you're sure of the qualifications of the neurosurgeon. Just a suggestion of some things I would keep in mind if it was me or one of my family members.

Funny, when we watching CNN later on in the morning I saw a commercial with this place and it sounded very, very good.
 

pawbaby

Moderator
Aug 29, 2008
9,671
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Hubby is taking me to Bismarck to see a doctor there. I don't know if I'll be back today. He may say this has to be done right away and put me in the hospital. I'll try to update later. Thanks for the prayers. I'm so scared. Gotta be ready in an hour and a half and have to leave my dogs.
I will be thinking of you and praying Connie. I hope you have a friend or family member that will check on your girls so that you wouldn't have to worry. I sure hope you receive some encouraging news by whoever you see in Bismark.
 

Candy

Owner/Admin
Staff member
Aug 29, 2008
32,507
6,214
113
Washington State
Oh Connie Girl, been thinking and praying for you all morning..Cory gave you great advise, and like she said you gotta stay positive , and i don't want to her the comment you made about not making it...of course you will make it, your Girls need you so keep this in mind...i know you are scared, i m sure your Hubby and Daughter will help you with the girls and give them their meds.I know your worry, when i was in ER last week hey wanted to admit me to Hospital over my pancreas inflammation , i refused as i was worried about the Babies as we never been apart the last 11 years, so i know your stress..wanna call you and give your comfort, but you prob @ Neurosurgeon or Hospital...i am so worried about you...please, please stay positive and relay on your faith and you will be ok. The pillow thing helps a lot, i have one between my knees and it really helps. So sorry i did not reply earlier, but been consoling Syl, she has to put one of her dos PTS and she is besides herself and to top it off her car broke down so she has my Truck...call me if you can ! Sending lots of love and prayers xoxo
 

LynnR

Lynn, Benji, Calleigh, Maggie
Oct 13, 2009
14,299
2,706
113
Cranbrook, B.C. Canada
Thinking about you and :prayer: for you Connie. I hope you will be back with us soon and that everything goes well with your surgery. We will all worry about you while you are away.

Take care of yourself and try not to worry.

 

pawbaby

Moderator
Aug 29, 2008
9,671
1,918
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I've been thinking about you Connie and hope everything goes well with your surgery if that was recommended by the specialist in Bismark. Please get well soon sweetie. :blowkiss: :flower:
 

pawbaby

Moderator
Aug 29, 2008
9,671
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Connie, I have been praying for you and hope you're okay.



Please get well soon! We all sure miss you!

 

Connie

Featured Seller
Oct 19, 2009
3,463
497
83
Minot, ND
Hello you dear friends. Love you all! I had my surgery. We got to Bismarck to the neurosurgeon and he brought up my MRI on his computer. Starting at the lower lumbar area he said there's a few bad discs there and then moved up to the T9 and T10 area and he said, "This is very serious and needs to be dealt with immediately or you will be paralyzed and in a wheel chair." He said if I was his Mom, he would tell her to take the first available surgery and that will be 7:00 in the morning. He said he would do it now, but have to get approvals and also the pre surgery physical. First we asked him what type surgery he would do and he said he would come in from the back, take pieces out and grind down other areas. I said I will take that first surgery. Hubby had considered taking me to the Twin City Spine place, but that would be too risky traveling and this needed to be done now. So, I then had my pre surgery physical and the doctor moved a couple of his surgeries to later so he could do me first. After the surgery, he explained that I would have bad pain for quite some time because he had to do so much manipulating of my spine. He also said that it will take 12 - 15 months before my legs are back to normal. They are already better and many of the pains and sensations I had, I haven't had since the surgery. He's also hoping the lower lumbar region will be helped with pain shots. Wish he had given me some pain shots during the surgery, as it is hurting non stop. I didn't even feel pain in the thoracic area until after the surgery. Sitting down or laying down or getting up is the hardest and I hate doing any of that because I know that excruciating pain is going to happen. I had the sweetest and caring nurse that first day and she did everything she could to try to keep me comfortable. Then she went home and I my new nurse didn't give a rip and for the most part, just ignored me. She gave me a pain pill at 11 and that was it. I even got up on my own to use the bathroom because I had to go so often and she wouldn't come when I needed her. By the time Katy (the sweet nurse) got back my pain was so out of control. I had even started crying, but it hurt too bad to cry, so had to stop that. Katy was so upset and quickly did everything she could to lessen the pain. By afternoon the pain was better and then a PT guy came and wanted me to go for a walk with him. That went well until he wanted me to try some stairs. I used my right foot for the first step and when I went to use my left foot, my leg gave in. He was right behind me to soften the fall, but then there we were...both in squatting positions and man oh man, did that hurt. We finally managed to get up and I'm sure that fall didn't help that lower lumbar region and possibly made it worse. I forgot to mention that my son, Tyler, lives in Bismarck, so it was nice to have him nearby. My sister Judy and daughter Melissa took excellent care of the dogs and I am so grateful to them. They even, along with my niece, Cherie, vacuumed and dusted the house. I like to keep a clean house, but just wasn't able to do that in the past weeks, so I came home to a clean house. My girls were so glad to see me! I was so thrilled to see them too. Now I'm doing practically nothing except sleep, and they just curl up on the bed with me and sleep too. I guess this will be a long recovery, but I'm just so thankful that I am still here and not paralyzed for the rest of my life. Hugs and love to all of you...thanks for being my dear friends and for your prayers!